Living with an Autism Spectrum Disorder (Asperger's Disorder) as an adult female.

Next Steps

Broken Light: A Photography Collective

Photo taken by contributor autisticaplanet, a woman in her thirties who has Asperger’s Syndrome and accompanying anxiety related to social and sensory issues. She also has OCD. She writes a blog to pass along lifelong lessons to help those, adults in particular, dealing with Asperger’s. She hopes to help neurotypical people better understand the “complexities within the complexities” of autism spectrum disorders. She has had a passion for capturing images since childhood, when her father bought her a Kodak 110 on vacation. She’s been told that she sees and captures what others overlook or miss. Her work has been featured in the Daily Herald as well as the MAAP Newsletter, a publication for those with ASD and those who love them.

About this photo: “​​​​There are some changes going on in my life right now, but I am trusting in God and keeping a good attitude. Though the steps…

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Please take a moment to  answer the poll. Thank you!

Thank you to all who took time to vote. Hope for more votes.

Don’t feel bad if you can’t read the book @ this time. I’m not a big reader myself. It can be downloaded for later.

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I am blessed to announce that my work is now being sold! Mom & Me Unique Boutique in Elgin, IL, is selling my bracelets. This purple, red and black themed set was completed last week.

What makes my stretch jewelry unique is that I double knot and glue when I am done, and put a large spacer bead over the knot for a finished look.

It is fun and a good way to pass time as I’m mostly at home by myself.

Below is a link to my first memoir, The Onion in the Petunia Patch. It is about one autistic girl’s life from Childhood to adulthood. First as undiagnosed, later misdiagnosed and finally diagnosed. It is about 30 pages long. I hope you will like reading it.

Allison Kindergarten

I was 5 when this was taken. I was so afraid of the camera back then. The flash is what did it. It was torture. An aid was sitting below, holding my hand. When it was over, I collapsed in tears and the aid comforted me. Unusual for my school days. I am not a writer of length, but felt God was calling me to write a book.

The Onion in the Petunia Patch_observations of life with an autism spectrum disorder-better cover

If you are an adult on the autism spectrum who has a kind and forgiving spirit, can agree to disagree in a constructive mannerand want to friend me on Facebook, send me a friend request. Know that I generally don’t participate in groups, however.

Allison Pioneer Center

Dear Governor Rauner and Illinois General Assembly,

In 2014, my mother died. The loss of a mother is hard enough for anyone, but for an autistic adult who is dependent on others to survive, I can assure you that the loss is more difficult for the person to bear.

In fact, it is due to my faith in the Lord Jesus and loving family that I am still here today.

It has been a scary time for my only sibling, who had to take over a lot of my mother’s roles.

One of the things that made life easier was the Pioneer Center in Mc Henry, IL, which is closing its behavioral health services completely on May 12. This is entirely due to the budget cuts  those in the General Assembly voted for and Gov. Rauner who approved.

What makes this cut so hard for me is that, due to my autism, I may not have a QUIET place I can rely on to go for therapy and medication management. I cannot go just anywhere. I’ve been going to behavioral health facilities for services since I was a teenager. I either couldn’t stay or had to have special accommodations made due to kids screaming in the hallway or in an adjoining therapy room.  It is also hard to focus when teens and adults are crying or yelling in those same areas. I have sensory processing disorder and cannot think or function when overwhelmed. This has lead to meltdowns so bad that at another facility, they went into lock-down mode. Fortunately, this place never gave up on me until the county changed their laws to county only patients.

Since I am frequently on the downside of rules and regulations, I can tell you it was a blessing to find the Pioneer Center. I had been praying about it and came across their website and had peace about contacting them.

With my sibling’s help, we made the arrangements to come to Pioneer Center. The layout is (soon to be was) a blessing. Adult psychiatric services was on its own floor. The elevators were outside the lobby in an anti room. Meeting with my therapist was a positive experience. I needed case management. My therapist succeeded in finding what I couldn’t on my own.

I even had a little socialization. A client was warm and welcoming and we would meet and hang out in the lobby or the picnic area outside near the man-made lake and watch the geese.

The sheltered workshop and in-home help for severely disabled children has been forced to close. Residential homes have had to merge.

In November, 2015, I wrote a letter to you, Gov. Rauner, explaining some things I have mentioned here. I received a form letter about a month later that stated this premise “we all have to make sacrifices”.

Why is it vulnerable citizens who didn’t do anything to the state’s pension funds (along with veterans and college students) are the only ones who are feeling the sacrifices while the well-healed get to dictate them?

I know there are those in the Church who feel Social Security is wrong, that it is the Church’s job to provide charity. Perhaps as a Christian yourself, you hold that same view. However, until someone comes up with a better plan, I don’t see how ditching the program or any other social service program (Medicaid, Medicare, SNAP) with no fall-back plan will help.

I can hope that one bad move can be followed by a good one. Agencies like Pioneer Center and AID could use a hefty donation in kind from a well-heeled philanthropist. That would be a good first step.

I can’t leave Illinois. My family and one friend are here. My sibling’s job is here. There is no option to transfer.

I ask you, Governor Rauner, and the Illinois General Assembly to come up with an amendment to the cuts that took services from Illinois’ most vulnerable away.

Regards,

Allison “autisticaplanet” Kramer

“Without guidance from God
    law and order disappear,
    but God blesses everyone
    who obeys his Law.” ~Proverbs 29:18 Holy Bible, CEV

Autistic Shutdown

Autistic Shutdown
Posted March 30, 2016 by unstrangemind

Unstrange Mind

shutdown It looks like caution tape because autistic shutdown is something that should be treated with caution. A shutdown now and then won’t hurt, but regularly repeated over time, shutdown can lead to neurological damage, especially in children.

By now, pretty much everyone who knows much of anything about autism has heard of meltdowns — episodes of frustration and panic that seriously disrupt the lives of Autistic people, to varying degrees and amounts per person. But shutdowns don’t seem to get talked about as much as meltdowns and I run into people who, despite the blue-illuminated buckets of “autism awareness” out there, were completely unaware of the phenomenon of shutdown.

I had a pretty bad shutdown last week so I thought I ought to write a little bit about them. The people in my day-to-day life were unprepared to deal with a shutdown and that increased everyone’s stress levels. More education about shutdowns…

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This poem deals with the frustration of trying to explain myself over several decades to laypeople and medical professionals alike. My mother took the picture of me in sensory overload back in 2009.

Allison Amplified (You Tube Profile Image)

“Allison Amplified” 2009

And What Doesn’t Change Remains the Same

My throat is raw,

I have no voice to speak

It should be clear to me

It should be crystal clear to me

By now

 

My throat is uncooked hamburger meat

I have no voice to speak

This should be cut and dry for me

Cut and dry

As a dirty razor’s jagged edges

 

I was no more than a child

When the flood came for me

It tried to drown me

But I would not go down

 

How that haunts me now

Forced to stare into your eyes

 

I’d never figured

On so many people

With ears and eyes

That absorbed only what their owners

Wished

And left the rest to die

 

Basking in their ignorance,

Their apathy,

Making a fool and a prisoner out of me

 

Still, I screamed on through the nights

And gestured through the days

 

Believing

 

The wax would melt

And the scales would fall off

 

I’m older now,

Older than I’ve ever been

And I’ve learned that what doesn’t change

Remains the same

 

But unlike you

It isn’t by will

It is by design

Being disabled isn’t a crime

But being both deaf and blind

In spirit

Is a sin

Unforgivable without God

 

And there will come a time

Perhaps if you grow very old and sick

You’ll need someone to lend an ear

And keep an eye on you

 

And what doesn’t change remains the same…

 

Allison M. Kramer “autisticaplanet”

Copyright 2011 All rights reserved

 

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